Statement from ARRIGE Steering Committee on the possible first gene-edited babies
3 December 2018
About ARRIGE
On March 23, 2018, in Paris (France), we launched the international “Association for Responsible Research and Innovation in Genome Editing” (ARRIGE) to promote a global governance of genome editing. We aim at providing a comprehensive setting for all stakeholders (academics, private companies, patient organizations, citizens, decision makers) to allow the development of these paramount technologies in a safe and socially-acceptable environment. This meeting was the continuation of several workshops held with African, Latino-American and Indian colleagues, to find common means to address the ethical and societal issues raised by the rapid introduction of gene editing technologies.
How to join ARRIGE?
The ARRIGE initiative was launched in Paris on 23 March 2018. However, the association does not exist yet, formally speaking. Currently, we are working hard preparing all the administrative and legal paperwork required to officially register ARRIGE as an international non-for-profit organization in France, with the great help and commitment from members of the INSERM Ethics Committee. In the meantime we have activated a communication channel, a discussion email list, where all interested individuals and organizations that would like to help and contribute to the foundation of ARRIGE, and/or to eventually become members of the association, are kindly invited to join. If you would like to join ARRIGE please send us a message to join@arrige.org and we will register your email address in the ARRIGE discussion email list.
Marion Abecassis, Bernard Baertschi, Hervé Chneiweiss, François Hirsch, Pierre Jouannet, Jennifer Merchant, Lluis Montoliu and Cyril Sarrauste de Menthière
Keynote Lecture by Francis JM Mojica at the ARRIGE Kick-Off meeting
Presentation of the ARRIGE initiative by Hervé Chneiweiss at the ARRIGE Kick-Off meeting
Lluis Montoliu final remarks, workshop conclusion and next steps at the ARRIGE Kick-Off meeting
European Steering Committee publication (July 2017)
Fostering responsible research with genome editing technologies: a European perspective. Chneiweiss H, Hirsch F, Montoliu L, Müller AM, Fenet S, Abecassis M, Merchant J, Baertschi B, Botbol-Baum M, Houghton JA, Kritikos M, Mifsud J, Bartnik E, Rath J, Druml C, Friedrich B, Carvalho AS, Lanzerath D, Saint-Raymond A. Transgenic Research 2017 Oct;26(5):709-713. doi: 10.1007/s11248-017-0028-z. Epub 2017 Jul 20.
ARRIGE has established a specific web domain (arrige.org); an email account (join@arrige.org); a twitter account (@ArrigeOrg); a blog, and an internal discussion email list, to promote the discussion and sharing of ideas around the subject of responsible use of genome editing technologies.
Some of the Organizers and/or Speakers at the ARRIGE Kick-Off meeting in Paris
ARRIGE web site prepared by Lluís Montoliu - Last modified: 3 December 2018
