Initial ARRIGE meetings
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ARRIGE KICK-OFF MEETING, Région Île-de-France, Paris, France, 22-23 March 2018
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Kick-off meeting for launching the Association for Responsible Research and Innovation in Genome Editing (ARRIGE)
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On March 23rd we launched the international “Association for Responsible Research and Innovation in Genome Editing” (ARRIGE) to promote a global governance of genome editing. We aim at providing a comprehensive setting for all stakeholders (academics, private companies, patient organizations, citizens, decision makers) to allow the development of these paramount technologies in a safe and socially-acceptable environment. This meeting was the continuation of several workshops held with African, Latino-American and Indian colleagues, to find common means to address the ethical and societal issues raised by the rapid introduction of gene editing technologies.
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ARRIGE Kick-off meeting steering committee: Marion Abecassis, Bernard Baertschi, Hervé Chneiweiss, François Hirsch, Pierre Jouannet, Jennifer Merchant, Lluis Montoliu and Cyril Sarrauste de Menthière
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FINAL PROGRAM
- MEETING BOOKLET
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There is no registration fee for this meeting, but registration is required Contact email for registrations and questions: arrige-event2018.CEI@inserm.fr
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Meeting web site: inserm-arrige2018.com
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Suggested hashtag for social networks: #ARRIGE
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INSERM, as the local hosting institution, will be offering few travelling grants for those coming from Low and Middle Income Countries (LMICs) upon evaluation of a CV and a one-page motivation letter, which should be submitted to the indicated email address.
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Some PICTURES of this meeting by Lluís Montoliu
Official PICTURES of this meeting from INSERM Presentations (PDF format and correspondig videos in YouTube) ARRIGE Kick-Off Meeting playlist: watch all 21 YouTube video files played in order  Welcome address. Hervé Chneiweiss (President, INSERMS Ethics Committee, France)- Setting the stage, where do we stand today with CRISPR technology. Francisco J. M. Mojica (University of Alicante, Spain)
- Review of Ethics positions, reports, documents published on gene editing by other groups and institutions. Ewa Bartnik (University of Warsaw, Poland, former rapporteur UNESCO ICB)
- Taking seriously the anthropological and societal impact of genome editing technologies. Mylène Botbol-Baum (Inserm Ethics Committee & Catholic University of Louvain, Brussels, Belgium)
- Ethics of the genome editing technologies: Presentation of ARRIGE. Hervé Chneiweiss (President, INSERMS Ethics Committee, France)
- Addressing issues raised by GE technology through the creation of ARRIGE
- Human issues. Peter Mills (Nuffield Council on Bioethics, London, United Kingdom)
- Environmental issues. Andreas Kurtz (Charité Hospital Berlin, Germany and European Group on Ethics)
- Animal issues. Filipa Ferraz-De-Oliveira (Ethics Sector, European Research Council, Brussels, Belgium)
- Intellectual properties & economic issues. Béatrice Holtz (LAVOIX, Paris, France)
- Involving patients in the discussion. Lauren Roberts and Louise James (Genetic Alliance UK)
- Final comments from UNESCO. Magnus Magnusson (Director of Outreach and Communication, SHSS, UNESCO)
- ARRIGE Kick-Off Workshop conclusion: next steps. Lluís Montoliu (National Centre for Biotechnology CNB-CSIC and CIBER of Rare Diseases CIBERER-ISCIII, Madrid, Spain)
Some pictures taken during the ARRIGE Kick-Off meeting in Paris
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