The ARRIGE Scientific Committee has been created and their duties include:
to provide a forum of experience and knowledge-sharing in the field of genome-editing
to ensure the quality and scientific integrity of the studies and reports undertaken by the focus groups of the Association
to be responsible for the quality and the scientific integrity of the ethical recommendations the Association may draft for users of genome-editing technology, national and international decision-makers and the civil society at large.
Members of the ARRIGE Scientific Committee:
Janet Rossant (Canada), Matthew Porteus (USA), Stephen Ekker (USA), Lydia Teboul (UK), Bruce Whitelaw (UK), Tony Nolan (UK), Yann Herault (France), Gaetan Burgio (Australia), Jerome Amir Singh (Canada), Eleonore Pauwels (USA), Ayola Akim Adegnika (Gabon), Fabiana Arzuaga (Argentina), Mylène Botbol (Belgium), Pierre Jouannet (France), Amar Jesani (India), Josep Casacuberta (Spain), Martina Crispo (Uruguay) and Juraj Koppel (Slovakia)
to promote a global governance of genome editing through a comprehensive setting for all stakeholders, including academics, researchers, clinicians, public institutions, private companies, patient organizations and other non-governmental organizations, regulators, citizens, communication media, governmental agencies and decision makers
to push forward the scientific, ethical, social, legal and political reflection in the field of genome editing
to foster the development of genome editing technologies within a safe and ethical framework for individuals and for our societies
the dissemination of reliable information regarding genome-editing technology for experts (all fields included), politicians and citizens throughout the world.
The Founding Board of ARRIGE is formed by:
President: Lluís Montoliu (Spain)
Vice-President: Hervé Chneiweiss (France)
General Secretary: François Hirsch (France)
Deputy General Secretary: Christine Lemaitre (France)
Treasurer: Cyril Sarrauste de Menthière (France)
Deputy Treasurer: Jennifer Merchant (France)
Legal Advisor: Marion Abecassis (France)
Board member: Bernard Baertschi (Switzerland)
Final comments, workshop conclusion and next steps by Lluis Montoliu (CNB-CSIC and CIBERER-ISCIII, Madrid, Spain) at the ARRIGE Kick-Off meeting. ARRIGE Kick-Off meeting was held on 23 March 2018 at the Région Île-de-France Parliament, in Paris, France.
Final comments from Magnus Magnusson (Director of Partnership and Outreach, SHSS, UNESCO) at the ARRIGE Kick-Off meeting. ARRIGE Kick-Off meeting was held on 23 March 2018 at the Région Île-de-France Parliament, in Paris, France.
Talk by Hervé Chneiweiss (INSERM Ethics Committee) on the Ethics of the genome editing technologies: presentation of ARRIGE, at the ARRIGE Kick-Off meeting. ARRIGE Kick-Off meeting was held on 23 March 2018 at the Région Île-de-France Parliament, in Paris, France.
Basic information about the ARRIGE initiative can be obtained from this Presentation document (March 2014), prepared by the ARRIGE Steering Committee. This is a working document.
How to join ARRIGE?
The ARRIGE initiative was launched in Paris on 23 March 2018. However, the association does not exist yet, formally speaking. Currently, we are working hard preparing all the administrative and legal paperwork required to officially register ARRIGE as an international non-for-profit organization in France, with the great help and commitment from members of the INSERM Ethics Committee. In the meantime we have activated a communication channel, a discussion email list, where all interested individuals and organizations that would like to help and contribute to the foundation of ARRIGE, and/or to eventually become members of the association, are kindly invited to join. If you would like to join ARRIGE please send us a message to email@example.com and we will register your email address in the ARRIGE discussion email list.